In that one moment, it felt like my whole life up until that point finally made sense. All my questions were answered. All my wondering, resolved. All my confusion, explained. On the one hand, I was relieved to have a diagnosis. I now had a reason for why things were the way they were.
On the other hand, though, the diagnosis was devastating.
I’ll be in a wheelchair?
I’ll have trouble talking and even swallowing?
All my hopes and dreams were torn away from me with two simple words: Friedreich’s Ataxia.
The career I pictured for myself…
The thought of playing with my kids and coaching their sports teams…
What is my purpose now? Is my life even worth living? One out of fifty-thousand — how can this be happening to me?
God, where are You?